Many organisations offer support, help and advice about caring for a person with a learning disability and dealing with the death of a loved one.
Please note that LeDeR is not responsible for the content on any of the below websites.
- Bereavement Advice Centre
- Books Beyond Words: When somebody dies
- Child Bereavement UK
- Child Death Helpline
- Cruse bereavement care
- Dying Matters Support service
- Dying to Matter - a guide for bereaved families (PDF, 1,097kB)
- Respond for people with a learning disability, autism or both who have experienced trauma
- Survivors of Bereavement by Suicide
- SUDEP Action for support around sudden death from Epilepsy
- Sue Ryder support for people who have a neurological condition or who have lost someone
- The Compassionate Friends (TCF) – supporting bereaved parents and their families
- Advocate 4 Health - Advocate 4 Health is a group of people with a learning disability. This site is about how to be healthy.
- A Picture of Health - This website helps clinicians provide Easy Read information to people with learning disabilities.
- Disability Unit – the Disability Unit of HM Government
- Easy Health - Easy Health's information is accessible to anyone with low literacy levels, including people with learning disabilities.
- Royal College of General Practitioners Resources
- Understanding intellectual disability and health – University of Hertfordshire resources
Policies and reports
- CIPOLD report
- Building the right support for people with a learning disability and/ or autism (PDF, 1,485kB)
- CQC (2016) Learning, Candour and Accountability
- Mazars (2015) Independent review of deaths of people with a Learning Disability or Mental Health problem in contact with Southern Health NHS Foundation Trust April 2011 to March 2015
- Transforming Care for People with Learning Disabilities – Next Steps January 2015
- WINTERBOURNE VIEW – TIME FOR CHANGE 2014
- Care Act 2014
- Review into the quality of care and treatment provided by 14 hospital trusts in England: overview report - Professor Sir Bruce Keogh KBE July 2013
- Mencap (2012) 74 deaths and counting
- Equality Act 2010
- Sir Jonathan Michael (2008) Healthcare for all
- Mencap (2007) Death by Indifference
- Mental Capacity Act 2005
- Glover et al. 2017. Mortality in people with intellectual disabilities in England
- Hosking et al. 2016. Mortality Among Adults With Intellectual Disability in England: Comparisons With the General Population
- Heslop et al. 2014. The Confidential Inquiry into premature deaths of people with intellectual disabilities in the UK: a population-based study