When someone aged four years and over with a learning disability dies, a health care professional, GP, family member or anyone who knew that person can tell us about their death.

Once we have the details of someone’s death, we start the review process, which we aim to complete within six months. We know that some family members might not be ready to talk with us straight away. A reviewer or member of the LeDeR team will perform an initial review which includes:

  • speaking to the family member or someone close to the person who died to build up a picture of their life and the type of person they were. This will help the reviewer understand more about the person. The reviewer might also speak to someone they lived with or a carer who they were close to
  • a detailed conversation with the GP or a review of the persons GP records which will be accessed confidentially
  • a conversation with at least one other person involved in the care of the person who died

After this, the reviewer uses their judgement to decide if a focused review needs to happen. A focused review will usually happen if:

  • the reviewer finds areas of concern or things they think we can learn from
  • or if the person is from a Black, Asian or minority ethnic background

A focused review will look in more detail at the person’s life and will often have more people with different jobs involved in the review. 

  • Once  a review is completed, the reviewer will present areas of learning, good practice and areas of concern to the local governance group or panel which agree what actions should be taken, by who and when to help reduce health inequalities and stop people dying too young

A family member can always ask for a focused review to be completed. A conversation will take place between the family and the reviewer about the expected outcome of a LeDeR review.